Fingers crossed for new GI doc
The importance of a good doctor-patient relationship is central to successful treatment of any malady, be it the common cold, depression, or a chronic disease.
Fellow IBD-helminth-blogger-comrade Luke from the great blog LukEcology recently wrote a nice post about this, Your Doctor and You, check it out.
Truthfully, I’ve never liked my GI. I was kid when I first was put in his hands, fresh out of my first year in college, a scared shitless (literally) kid who had been sick for months and had lost 30 pounds and was willing to do anything for relief and answers. My GI was conventional, seemed friendly enough at first. However, as I came to terms with the disease, my next turn was the research the hell out of it, and I started asking questions. He was always nice, but every visit, I came with questions, curiosities, and really he just didnt want to engage in conversation with me about anything beyond my immediate symptoms. As far as he was concerned, as long as I wasnt having blood in my bowels, I was fine, and needed to “accept” that this was how my new normal would be.
Last year, when I had learned of helminthic therapy and came to his office with dozens of articles, well informed, and ready to ask him all about it, he completely blew me off. At the very mention of it, he just cut me off with a “oh yeah, they’re doing that stuff on rats for allergy,” then when I showed him some human trial studies I had printed out, he was surprised and probably embarrassed, stood up to shake my hand and leave the office and muttered something like “uh yeah I’ve got stacks of journals in my office I haven’t gone through yet.” As I left he said something like “uh yeah I’ll look into that for you,” but clearly he just wanted me to leave so he could have lunch.
In any case, I’m meeting with a new GI tomorrow outside of Boston, and I’m excited as I picked her because I “heard” from a friend on the yahoo boards that she’s familiar with H therapy, is very friendly, and she’s connected to Tufts University, which is where much of the research on pig whipworm therapy is being done.
I admit, I’m also nervous about being rejected. I really need to find a GI who is willing to work with me through this therapy, right now I’m just under the care of a PCP who is clueless about IBD but at least vaguely supportive. This disease is hard enough, and this therapy is so ridden with unknowns, that I simply cant do it on my own. Marc at AIT has been wonderful, but he’s in England, and cannot function as my GI in any real capacity.
Wish me and my little comrades luck.